Special Needs Planning

We plan for your child's lifetime because we plan for ours.

Professional expertise shaped by personal experience. FamilyVest combines CFA/CFP rigor with the lived understanding of families navigating ABLE accounts, special needs trusts, and lifetime care funding.

$2,000.

That is the SSI asset limit. A single well-intentioned gift, a life insurance policy named to the wrong beneficiary, or a general inheritance without a properly structured trust can disqualify your child from Medicaid, SSI, and the waiver services they depend on. The rules are unforgiving. The stakes are permanent. The planning has to be precise.

Todd's son with a goat

Todd's Perspective

CFA + CFP | Two Sons with Autism

Business Radio Powered by The Wharton School on SiriusXM

Discussing special needs financial planning with Prof. Kent Smetters Listen

This isn't an advisory practice that happens to serve special needs families. This is a practice built because we live this reality at home. Todd has two sons with autism. The financial complexity, the regulatory maze, the stakes, the fear of making one wrong move that costs years of benefit eligibility—he doesn't advise on it theoretically. He navigates it daily.

That changes everything. Other advisors know ABLE accounts. Todd knows what happens when a parent passes without a funded second-parent SNT in place. They understand Medicaid rules. He understands the weight of funding a child's lifetime care while protecting their benefits. The difference between knowing the mechanics and understanding the reality is the difference between generic advice and a plan that actually works.

FamilyVest exists as it does because of this. Every client benefits from that foundation—families with complexity deserve advisors who understand it.

Coordinated Planning

The Pieces That Have to Fit Together

Special needs planning isn't a single product or account type. It's a system where each piece protects and enables the others.

ABLE Accounts

Special Needs Trusts

SSI/SSDI Coordination

Medicaid Preservation

Guardianship Alternatives

Estate & Lifetime Care Planning

The Emerald Coast Community

A community that understands what your family needs.

The Gulf Coast corridor from Destin through Niceville has a meaningful concentration of special needs schools, ABA providers, therapy centers, and parent advocacy networks that is unusual for a region of this size. For families already here, we know this community. For families considering relocation, we can speak directly to benefit portability, Medicaid waiver waitlist strategy, and the estate planning implications of a state change.

This is not a general observation about a nice place to live. It is a planning consideration that most advisors in most cities cannot address.

Special Needs Resources

Destin · Niceville · 30A

Schools, therapy centers, ABA providers, and advocacy networks — one of the highest concentrations per capita in the Southeast.

How We Work

Special needs planning is a process, not a product.

Different life stages require different plans. We stay with your family through all of them — from the first conversation to ongoing stewardship across decades.

Before we look at a single account or benefit form, we need to understand your child — their current level of independence, their care needs, what a good adult life looks like for them, and what keeps you up at night. This is the conversation most advisors never have.

  • Personal skills, care needs, and daily life assessment
  • Vision for adult life — vocation, residence, community, relationships
  • Life transitions coming and when — aging out of school, residential moves, parental incapacity
  • Circles of support — who is in your child's life and who comes after you

Special needs planning has four distinct domains: Life, Resource, Financial, and Legal. We map all four together so nothing falls through the cracks. We also model your child's lifetime care costs — a number most families have never quantified — and identify the gap between what benefits cover and what the family must fund.

  • Individual Life Plan (ILP) development and milestone mapping
  • Benefit eligibility baseline — SSI, Medicaid, DD waivers, SSDI
  • Lifetime care cost modeling by life phase
  • Family financial planning — parents' retirement, siblings, grandparents' timelines
  • Resource planning — employment, residential options, state disability services

This phase varies most by family. A family with a minor child has a different conversation than one whose child is aging out of school services. We model scenarios, identify structural risks, and coordinate with your attorney and CPA before a single document is drafted.

  • SSI and Medicaid asset and income analysis — routing every dollar correctly
  • Trust structure selection — first-party vs. third-party vs. pooled SNT
  • ABLE account eligibility and strategy (2026: age-of-onset expanded to 46)
  • Insurance adequacy — life, disability, and long-term care on both parents
  • Tax implications of trust funding and distributions
  • Guardianship vs. supported decision-making alternatives
  • Coordination with your special needs attorney and CPA

Your comprehensive plan is delivered with specific recommendations across all four planning domains — Life, Resource, Financial, and Legal. It includes clear next steps for your attorney, a benefit application timeline, and a Letter of Intent framework that tells the people who come after you who your child is and what their life should look like.

  • Written plan with recommendations across all four domains
  • SNT drafting coordination checklist for your special needs attorney
  • Benefit application timeline and documentation checklist
  • Letter of Intent framework — personal narrative, care summary, key contacts, financial information
  • Accessible through your client portal at any time

A special needs trust is not a standard investment account. The risk profile, liquidity needs, and distribution strategy are different. We build the investment policy around the lifetime care plan, not a generic allocation model.

  • Investment policy for trust assets — risk, liquidity, and time horizon for a lifetime care fund
  • SNT funding strategy — what assets, when, and how
  • ABLE account setup and contribution schedule
  • Beneficiary designation audit across all accounts, IRAs, and insurance policies
  • Asset location coordinated with trust structure and tax efficiency

Special needs planning has five distinct life stages — and each requires a plan update. Benefit rules change annually. Families make well-intentioned gifts that trigger benefit loss. Children age out of services. Parents die. We stay with you through all of it.

  • Annual benefit rule review — SSI limits, ABLE limits, Medicaid thresholds, waiver waitlist status
  • Trust distribution guidance to avoid in-kind support and maintenance (ISM) reductions
  • Tax return coordination for trust and child
  • Family coordination — helping grandparents, siblings, and extended family give without triggering benefit loss
  • Transition planning at each life stage — school aging-out, residential moves, death of first and second parent

The margin for error is small. The stakes don't get bigger than this.

Most families come to us after something went wrong — a gift that triggered benefit loss, an estate plan that named the wrong beneficiary, a trust drafted without Medicaid coordination. We would rather be the first call than the repair call.

If you have a child with a disability and you are not certain your plan is right, that uncertainty is worth a conversation.